Tuesday, August 19, 2008

Brain cancer SUCKS.

Don't get me wrong, I don't necessarily think that one sort of cancer is better than the other, with that said cancer in a 10 year old boy seems just a bit unfair.

My cousin Haley's son had been having leg pain for several months and some vision changes. Needless to say finally after an MRI they get a diagnosis and it's just one of those diagnosis I think every parent dreads or has nightmares about at some point. Brain cancer.

Chandler had a tumor in the back part of his brain the size of a orange... and it needed to come out now. Just thinking about it makes me want to hyperventilate, and even remotely contemplating what I would do if someone told me that about Connor makes me break out into cold sweats. I'm usually the one in the family that is calm in the face of the worst news or biggest tragedy but I've found that being a mom myself and the fact that Chandler is a boy striking a huge nerve.

Haley, Heather & Karen, if you guys are reading this... we love you and though since I've moved back home I know I've been neglectful about coming to see you but believe me, I think about you often and I'm here... and since I heard about Chandler I can't get him off my mind.

Chandler is a beautiful 10 year old 5th grader, he loves music and plays the violin. He had plans to learn how to play the trumpet but does not have one of his own yet.

I don't have all the details of how the surgery went last night but I do know that it was much larger than they had thought and they sadly could not get all of the tumor. I'll update you guys later with more about Chandler and about how he is progressing.


Beth @ TheAngelForever said...

Oh my :( My thoughts and prayers are definitely with Chandler and his family as they fight back again this awful cancer. Hugs to you and all of them.

Anonymous said...

My husband's uncle was diagnosed with brain cancer earlier this year. If you don't already know Angie at Keep Believing, please stop by and meet her. She's a wealth of information and emotional support - her husband is living with brain cancer. Angie's wonderful.

I'm sending thoughts and prayers for all of you in this difficult time.

Kathy said...

Your post popped up for me in a google news alert.

I am the mother of a boy now 13, diagnosed with a brain tumor almost 5 years ago.

At least for now, the cancer seems to be behind us.

I am one of the moderators for a large online group for the parents of pediatric brain tumor patients.

Because saving my son's life is my number one priority, I've learned a little about brain tumors and what to do about them and I'd love to be able to share information and to provide support to Chandler's parents.

So please pass my contact information on to them, or pass theirs on to me if they are willing.
bkbell at gmail

My cell phone# is on my blog.

Chic Shopper Chick said...

I'm so so sorry to hear about Chandler. I hope he recovers quickly and all of the news is only good. I will keep Chandler and your family in our prayers.

You're right, I can't even think about receiving that sort of news without feeling heavy. Makes me want to go hug my daughter right out of her crib.

Please keep us updated.


Laura said...

This is awful, I'm so sorry. My dad has brain cancer, and lives with the tumor, as it's in an inoperable location. Every tumor is different and comes with their own set of 'this sucks' issues, but honestly, most that I've heard of, do have successful surgeries or stories. I'm sure everything will work out. All the best.

Unknown said...

My thoughts and prayers are with Chandler & your family.

My brother-in-law was diagnosed with a soft ball size brain tumor when he was 4 years old. My in-laws (being more into alternative healing) wanted to try to avoid chemo & surgery was not an option. After trying several different options they found Dr.Burzynski in TX.

It took many years for Paul to be in full remission, but he is now a healthy, cancer free 25 year old. (The original medical team back when he was 4 only gave him 1-2 years to live).

You can find out more about Dr. Burzynski at http://www.burzynskiclinic.com/

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